Sunday, February 6, 2011

Time - it's own relief

Ten days on pain killers.  Finally, two days without.  The right shoulder is starting to ease.  WOO-HOO!  I have never had a bout that lasted this long.  I don't like this at all.  Not fun.  There was nothing I could do about it, but wait it out.  Other bouts of pain in one location or another would be three days, four days, but never two weeks tomorrow.  I guess the doctor is right that my meds aren't working anymore.  Time for something different.

I am still doing the organic diet.  I do not notice even a bit of difference.  The food is delicious, albeit more expensive.  It's more work, because I am cooking for myself and also cooking for Tom and Matt.  But I said I would do it and I continue on.  Who knows?  Maybe I will see some sort of change eventually.  I know this is healthier.

My rhurematologist's office called me the other day to say how sorry they were that I can not get in to the shoulder specialist until the 22nd of Feb.  In the meantime Dr. wants me to go to physical therapy.  I've been to p.t. so many times, I could be a physical therapist.  I don't think physical therapists understand the mystery of Lupus.  I get the feeling when I walk in they are thinking "she's here again".  The nature of Lupus is that it moves from one joint to another. 

I had been doing a series of exercises every morning and evening until this most recent episode got so very bad.  Then I simply could not do the exercises.  Barely moving my right arm was excruciating.

Today I could almost completely dress myself.  In this cold weather, I have been wearing turtle necks almost exclusively.  It is impossible for me to get a turtle neck on these days.  Tom had to help me yet this morning.  I was able to do my own hair today and I consider that a great accomplishment!!  It was very painful and difficult, but I really pushed myself to do it. 

I start p.t. tomorrow.  I am sure they will push me a little.

I've been thinking lately about the fact that Tom & I usually take a winter vacation.  I like to get away from the cold.  We didn't make any plans this year.  And what do you know, but we are getting hit with several inches of snow every couple of days.  I really hate it.  My body doesn't tolerate it well.  On the other hand, if we had made advance travel plans, I'm not so sure we could have gone with me so sick.  There's no way I could have helped with luggage, I could barely carry my own purse.  I wasn't sleeping well for so many nights with this ungodly pain in my shoulder.  That wouldn't have been good for a vacation.  Seems things worked out for the best.

We did spend a huge chuck of change on a temper pedic bed.  It came when the pain had first started, so until these past two nights I haven't been a very good judge of it.  Now that I am doing without pain medication, I would say the bed is wonderful!  I am so glad we made this investment.  Spent vacation money for the bed, you might say.

I am disappointed with my blog.  I thought people would read it and post on it.  No one is posting.  I thought that when you created a blog, it was out there and people wanting to know more about Lupus or wanting to share their info on Lupus would post.  It isn't happening.  I'm not sure how to really "get it out there."

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